Caring for a Child with a Rare Medical Condition: Navigating Systems and Building Support

Join us to discuss talking to others about your child’s unique needs, balancing family life, and building a support network. Are you a parent/caregiver to a child with a rare medical condition? Do you want to connect with others who share that experience?

Join us to talk about:

• How to talk to providers about your child’s unique needs •
• Staying organized, balancing family life and medical needs, and building a support network

As a thank you for participating, there will be a drawing at the end of the session.

Register Here